A Letter To Some Of My Doctors….

Over the years my view on most doctors have changed so much.

Before I saw them all as absolute heroes that have answers and care about each patient so very much… I was beyond wrong.

Don’t get me wrong, there are some good ones, but most doctors I ran into gives me a horrible feeling of worthlessness.

Dear Doctors,

I understand I am one in hundreds of patients, but can you at least Look me in the eyes and show my family and I some respect? You don’t think when I’m sitting there I can’t see your eye rolls or hear the ignorance and judgement in your voice? It’s one thing with me, but when you argue with my family about MY problems that I have. You don’t know crap about me! You don’t see and feel what I go through on a day-to-day basis!

Put yourself in our shoes. What if you had unknown medical problems you were trying to find the answers to? What if it was your son or daughter? Family member? Friend? Constant. Pain. I’m pretty sure you’d be busting your butt trying to find answers. Then they tell you “Oh maybe it’s your depression or anxiety doing it” NO! It’s YOU! Stop trying to blame that! How much hurt and stress you cause me and my family is unbelievable. The people who are supposed to help you with these problems are just adding to them!

You look at me and my problems as if it’s a piece of trash in the street that will eventually blow away and you’ll never see it again.

We wait months and weeks, sometimes YEARS waiting for an appointment through our busy life only to be told were just crazy. That there isn’t something wrong when there obviously is. You think all those scans and labs lie? All of the results and images are just bullcrap? That they’re just showing a mistake over and over again? And that’s only when you decide to tell us about the test and lab results, but when we look into my file it’s completely different from everything you said. I don’t appreciate being lied to.. Be honest and tell me what it honestly says. If it’s not coming up what you tested for okay, lets continue to search for an answer. I come to you for help, NOT obstruction.

Also, understand that we can’t always drop everything in a couple of hours when you want us to and travel over an hour to get there. We have other appointments and other things going on in our lives. Then don’t get mad and ignore us because of that, and refuse to talk to us… How does that make you look? Not very good.

Myself and many others have kept our mouths shut of how we really feel for so long and I just can’t keep it in anymore. I’m tired of being treated like this. I dread going to doctors not knowing what they’re going to come out with or how they’re going to react.

I hope and pray that one day my pain and symptoms are able to be helped enough to the point where I can care and be there for my family like i want to, and be able to enjoy every day like I should. To have some type of relief of knowing whats wrong and not being foreign with my body. But most importantly to me, not having my family and friends worry. Seeing that hurts me beyond any point knowing it’s about me, and i can’t do a dang thing about it.

I’d like to add a couple more points for some medical professionals…

Just because it’s “rare” or “uncommon” DOESN’T mean it’s not possible.

Every patient no matter their diagnosis is going to be unique. They’re not all the same.

We are not just our illnesses and problems. We have an identity. We have a name. Were US!

There are MILLIONS of diagnosis, rare and common. DON’T quit trying after a couple of test. Work with and listen to your patient. Listen to their input, sometimes you might just learn something new.

Kicking us to the curb wont help us, you, or your future patients possibly dealing with similar things.

Be humble.


I finally had to let my feeling out, and I hope you never have to go through this and are able to find answers and the best care you can possibly have. You deserve the best. I love you all so much and I’m always thinking of you!

Stay Beautiful



2 thoughts on “A Letter To Some Of My Doctors….”

  1. I have been thinking about doing a blog post just the same way! I love it, you did a great job. I have EDS as well, and share many of the same feelings. EDS is hard enough, but doctors make it harder. I hate going for help just to be told I’m doing it for attention. There are some good ones out there, but sadly they are few and far between. Keep fighting! You are worth it! Gentle hugs! ❤️


    1. Thank you so much for your kind comment! Feel free to make a blog post and tag me or let me know! You can even contact me on Facebook at Edspaoutreach! I would love to read it! Stay strong and keep fighting yourself! Much love! ❤


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