There are so many things about having chronic illness that frustrates me more than anything! Here are some of those things!
♥ Never knowing when the bad moments and flare ups are going to hit
♥ People a lot of times act as if this is how we wanted to be and its completely our faults… Why would we want to be so down and sick all the time? Why wouldn’t we want to live a normal life?
♥ Constant doctors appointments , many new doctors, and lots and lots of stress. It can take the biggest toll on you traveling to and from,dealing with new doctors, and problems. But yet, those of us still being thankful we have the opportunity to get the care we have.
♥ Never knowing for certain that just because you just completed something today, you’ll be able to do it again in the future.
♥ Being doubted by those you love and care about, when you want nothing more than their support.
♥ Having limitations on the things that you can and want to do.
♥ Not being able to bond and do things with your piers because its too exerting and exhausting on your body, it leaves you being singled out and alone.
♥ Those moments where the pain is so debilitating all you can do is lay there and cry, and there is nothing to help the pain.
♥ Having so many dreams and goals but, having a brick wall in the way of you being able to reach them.
♥ Things that could take the average person 1 hour to do, it takes me about 4 hours to do.
♥ Feeling so alone and out of place even when you’re surrounded by people, because you health and living is so different than others.
♥ Always having a constant bump in your road, just when things start to settle and get better something pops up.
Here are some of the things that frustrates me about having a chronic illness, but remember no matter how frustrated you get, stay strong and push on! Don’t let your illness define who you are, take control and live your best life! Love you all!
Stay Beautiful!!♥
~Cassie
Ehlers - Danlos Syndrome 